Since babies with cardiac problems may experience neurodevelopmental challenges, we have staff dedicated to this aspect of your child’s wellbeing. Our program nurse coordinates weekly discussions with your child’s care team, educates families about the importance of neurodevelopmental care, and provides enrichment activities. For many children up to age 2, after they are well enough to go home, our neurodevelopmental specialists can follow up regularly with them in our Pediatric Cardiac Neurodevelopmental Clinic.
Navigating your child’s care can be overwhelming and confusing. That’s why we have a full-time nurse liaison who is dedicated to helping you by gathering updates from your care team and answering questions.
Virtual Rounding for Offsite Parents and Caregivers
We encourage caregivers to be part of the care team for their child. For those who aren’t able to be in the PCICU with their child 24/7, we offer virtual rounding so you can participate in daily rounds with your child’s medical team in real time. This allows you to stay up to date on your child’s condition, regardless of where you are physically.
If your child has been diagnosed with a congenital heart condition before birth, you may already know that they will need to spend some time in our PCICU. Our fetal nurse will help you know what to expect by arranging a tour of the unit and answering your questions ahead of time so you can hit the ground running.
Lactation consultations are available for parents of newborns, and mothers who want to breastfeed are encouraged to do so as early as possible.