Caring for Children with Down Syndrome
About Down Syndrome
Down syndrome is a chromosomal condition that is often diagnosed before birth. In addition to developmental delays, intellectual disabilities, speech problems, and hearing loss, children with Down syndrome may experience other medical conditions, including heart abnormalities, gastrointestinal problems, pulmonary problems, spinal conditions, neurological concerns, and problems with their gross motor skills.
A Team Approach to Care
Our comprehensive Down Syndrome program includes experts with years of experience working closely with individuals with Down syndrome. Our team includes specialists in genetic counseling, speech and feeding therapy, nutrition, social work, and physical therapy.
Referrals to Specialists
We also provide referrals to specialists in ophthalmology, audiology, cardiology, gastroenterology, endocrinology, neurology, psychology, and occupational therapy. Our ongoing care of your child ensures related medical conditions are diagnosed early and treated promptly.
Family and Support Services
Advocacy for Families
Description
Our entire Down syndrome team helps you discover community resources and teaches you how to advocate for your child’s education, so that he or she receives needed services and care at school and throughout his or her life.
Education and Guidance
Description
Our child life specialists provide support, education, and guidance to help you and your child during treatment and hospitalization. Child life specialists explain procedures, offer encouragement, and use fun activities to take your child’s mind off treatment.
Care Coordination and Support
Description
Our social workers can help you navigate the medical system and coordinate the variety of health services your child needs. We help you work with insurance providers, connect you with resources, and help you manage details related to your child’s care.
Our Research-Based Approach
Nationally Recognized Experts in Down syndrome
Many of our doctors are also researchers who are nationally recognized for advancing the health and well-being of people with Down syndrome. Our research into lifelong preventive care and monitoring for Down syndrome and our collaboration with experts from different specialties are ongoing. We are currently investigating why some individuals with Down syndrome may have a sudden decline in thinking, called “Down syndrome disintegrative disorder.” Through these studies, we hope to identify the causes and potential treatments for this cognitive decline.
Support for Our Research Program
Our research program is supported by the Anna’s Angels Foundation, which is dedicated to improving cognition and communication abilities in individuals with Down syndrome.
