Cystic fibrosis treatment advances have made it possible for adults with cystic fibrosis to live longer. Successfully managing the demands of your lifelong treatment can best be achieved when you partner with a team of cystic fibrosis experts, like the doctors, surgeons and therapists in Duke’s accredited CF Care Center. Under our care, you will work closely with the full spectrum of cystic fibrosis specialists.
About Cystic Fibrosis
Cystic fibrosis disease is a complex condition that is best managed by a team of experts who understand your concerns, and are trained to prevent and treat the many complications that can arise. When you receive care at an accredited CF Care Center, you have access to a wide range of specialists who work closely together to minimize the impact of cystic fibrosis on your daily life. We do this by providing medical services that consider the needs of the whole person, not just your lungs.
Duke Health offers locations throughout the Triangle. Find one near you.
Our Team Approach to Your Cystic Fibrosis Treatment
Here’s how Duke’s cystic fibrosis team can help you, whether you are already receiving care for your cystic fibrosis elsewhere, are transitioning your care because of a move or because you were cared for at a pediatric center, or because your cystic fibrosis treatment has lapsed for a period of time.
Individualized Treatment Regimen
We know that one-size-treatment-does-not-fit-all, and that treatment will only work if you can incorporate it into your daily life. At Duke, you'll be cared for by a pulmonologist and therapists trained in cystic fibrosis. They will develop an effective, individualized treatment regimen that meets your needs.
Access to the Latest CF Therapies
Our involvement with cystic fibrosis clinical trials means you may have access to the latest CF therapies, including new antibiotics, drug-delivery systems, and CFTR modulators, which correct the genetic mutations that cause cystic fibrosis. As an accredited CF Center, we can look for mutations in your genes and determine if you qualify for one of these drugs, which can dramatically impact your cystic fibrosis symptoms and improve your life expectancy.
Seamless Transition from Pediatric to Adult Care
Our comprehensive program includes helping young adults begin taking responsibility for their own care. The transition from pediatric to adult specialists begins around the age of 16. We provide support and guidance to help young adults manage home treatments, monitor symptoms and learn when to seek help from a doctor.
Access to a Wide Array of Specialists
If complications such as diabetes, osteoporosis, chronic sinusitis, liver disease, and digestive problems arise, you’ll have access to a wide array of specialists at Duke, including endocrinologists, otolaryngologists (ENT specialists), and gastroenterologists. These specialists are familiar with the needs of adults with cystic fibrosis, and appointments can be conveniently coordinated.
Expert Pulmonologists in Lung Transplant
Lung transplant is a treatment of last resort but may become necessary if your lung function declines. Your pulmonologists are also key members of Duke’s lung transplant team. We have the expertise to help you understand and prepare for the transplant process if it becomes necessary. In addition, our pulmonary rehabilitation centers in Raleigh and Durham can help you optimize your breathing and functional status, which may delay the need for a lung transplant, but can also increase the chances of you doing well with a lung transplant.
Your Support Goes Beyond Medical Care
Changes in financial situations, employment, and insurance coverage can result in interruptions in your lifelong care that can be detrimental to your health. If your care has been interrupted, we can help you get your care back on track and provide support to help reduce the risk of care gaps in the future.
When it comes to your care, you want the very best. Duke University Hospital's nationally ranked pulmonology and lung surgery program was named best in North Carolina by U.S. News & World Report for 2019–2020.