QOL Ped Intestinal Failure (Short Bowel Syndrome) - Clinical Trial

If you choose to join this study, we will ask you questions about:
-Your life at home
-Your life at school
-Your medical needs.

We will ask you to answer these questions each year during one of your regular clinic visits.

Pediatric Intestinal Failure (Short Bowel Syndrome)

- Children and adults ages 6 months-to-25 years old
- Have a diagnosis of intestinal failure with current or prior history of specialized nutritional support

We are doing this study to find out more about the quality of life of children and young adults with intestinal failure (short bowel syndrome) and their families.