CHSS-CHD Registry - Clinical Trial
What is the Purpose of this Study?
In this study, doctors will collect health information from regular medical visits for people who were born with heart disease. Each year, the study team will contact participants to update their health information and ask them to fill out questionnaires. This study lasts for a long time and continues throughout a persons life to help doctors learn more about congenital heart disease.
Congenital heart disease
Who Can Participate in the Study?
This study is for people who were born with heart disease. They must have had heart surgery or be getting medical care for their heart condition at a hospital that is part of the CHSS group.
What is Involved?
The purpose of this registry is to collect information from people who were born with heart disease. Doctors will gather details about their health, the treatments they receive, and how they feel in their daily lives. This information will be used for research to help doctors learn the best ways to care for people with congenital heart disease and improve their quality of life.
Study Details
