What Is SCID?
SCID -- often called “bubble boy disease” -- is a rare disease that leaves a child unable to fight off germs. As the most severe primary immunodeficiency disease, it occurs when genetic defects impact how well the body’s immune system works. Babies with SCID may appear healthy at birth but can become very sick from germs that don’t usually cause problems in people with healthy immune systems.
Comprehensive Lifelong Care
We provide comprehensive care for SCID from childhood through adulthood. Our allergists and immunologists coordinate your child’s care with pediatric specialists throughout Duke, including nutritionists, occupational and physical therapists, and social workers. We have been designated by the Immune Deficiency Foundation as a Center of Excellence. This designation recognizes us for:
- providing the highest standard of care
- using innovation to advance treatments for immune deficiencies
- bringing groundbreaking clinical trials to our patients
Children with SCID require lifelong monitoring to ensure their immune systems are functioning well. We work with you and your child’s hometown doctor so you can stay close to home. Children typically come to Duke once a year for follow-up care with a specialist.