Centering Black Voices - Clinical Trial

What is the Purpose of this Study?

We are doing this study to learn more about the needs and challenges of Black parents and caregivers who are taking care of children who have special healthcare needs. We want to be able to provide better support for these families in the future.

What is the Condition Being Studied?

Improving Care for Black Children with Complex Medical Needs

Who Can Participate in the Study?

Adults ages 18+ who:

  • Are the parent of a caregiver of a child who is 21 years or younger
  • Help their child manage special medical needs (e.g., disabilities, chronic illnesses, or mental health challenges)

For more information, contact the study team at javier.rodriguez2@duke.edu or 919-620-4732.

Age Group
Adults

What is Involved?

If you choose to join this study, you will:

  • Have a phone call with the study team to find out if you are eligible to participate
  • Have an online interview with the study team using Zoom
  • Get compensation for your time if you finish the interview

Study Details

Full Title
Centering Black Voices: A Community-Partnered Intervention to Reduce Acute Care Utilization in Black Children with Medical Complexity
Principal Investigator
Pediatric Hospital Medicine Specialist
Protocol Number
IRB: PRO00116088
Phase
Phase Pilot
Enrollment Status
Open for Enrollment