CARRA Registry - Clinical Trial

What is the Purpose of this Study?

Participants will be followed for up to 10 years. Information from their pediatric rheumatology clinic visits will be added to a study database at least twice each year. Participants or their parents or guardians will also complete questionnaires during the study.

What is the Condition Being Studied?

Juvenile Idiopathic Arthritis (JIA), Systemic Lupus Erythematosus (SLE), Dermatomyositis and Vasculitis.

Who Can Participate in the Study?

Participants may be able to join if their rheumatic disease began before age 16 for juvenile idiopathic arthritis or before age 19 for other rheumatic diseases.

Age Group
Adults, Children

What is Involved?

This study collects information over time from children, teens, and young adults with rheumatic diseases that began during childhood. Researchers hope to use this information to better understand these diseases and improve future care and treatments.

Study Details

Full Title
Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry
Principal Investigator
Heather A. Van Mater, MD, MS
Pediatric Rheumatologist
Protocol Number
IRB: PRO00063358
NCT: NCT02418442
Phase
Phase N/A
ClinicalTrials.gov
Enrollment Status
Open for Enrollment
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