Identifying the Cause of Heart Muscle Disease, Arrhythmias, and Sudden Cardiac Death in Children and - Clinical Trial
What is the Purpose of this Study?
We are doing this study to learn more about the cause of cardiac (heart) disease or sudden unexplained death, which is something that can run in families.
Some conditions that we are looking at are:
-Cardiomyopathies (a disease of the heart muscle that makes it harder for your heart to pump blood to the rest of your body) such as hypertrophic cardiomyopathy, dilated cardiomyopathy, arrhythmogenic right ventricular cardiomyopathy
-Arrhythmia syndromes (a problem with the rate or rhythm of the heartbeat, either too slow or too fast), such as long QT syndrome, Brugada syndrome, catecholaminergic polymorphic ventricular tachycardia, short QT syndrome
-Sudden cardiac arrest or unexplained sudden death (heart stops suddenly), including sudden infant death syndrome (SIDS)
Children and adults with unexplained sudden death or heart disease that was diagnosed before the age of 40 years old
Who Can Participate in the Study?
-Adults, 40 and under
What is Involved?
If you choose to join this study, you will:
-Give a blood sample (must be able to travel to Duke for this)
-We may also ask family members to join the study to learn more about a disease running in the family.
For more information about who can be in this study, please contact the study team and leave your number.