You never want to have anyone say anything is wrong with your child,” April explained.
Seeking answers, the family and Luke were referred to Duke pediatric neurosurgeon Carrie R. Muh, MD. She diagnosed Luke with sagittal synostosis, the most common form of craniosynostosis, a condition that causes a baby's head to become misshapen as it grows because the skull does not form properly.
“Infants have separate islands of skull,” Muh explained. “Those islands are separated by sutures that are supposed to close at a certain rate and age. If they close too soon, the skull can’t grow the way it needs to.”
Babies' brains grow rapidly during the first year of life. As Luke's brain grew, his head became elongated. His parents said he seemed to be constantly in pain. He would cry through the night and only sleep for short periods of time.
Luke needed surgery to fix his skull or he faced the potential for continued headaches, discomfort, and possibly developmental issues.