The Duke Adult Cardiovascular Genetics Clinic (ACGC), a program within the Duke Heart Center, is dedicated to providing multidisciplinary clinical genetics care and education to adult patients with a known or suspected genetic cardiovascular disease, or with a family history of any cardiovascular diseases.
The ACGC provides quality medical care with a specific focus on cardiovascular genetics, has an easy referral system, and provides many educational and research opportunities for patients and their families.
Our clinic offers genetic counseling and consultations with physicians and genetic counselors who specialize in genetic cardiovascular disease.
In addition, if genetic testing is indicated, we arrange for this testing to be done, including helping patients and their families work with insurance companies.
Genetic testing can help to confirm diagnoses, clarify genetic risks in other family members, and can help guide whether testing would be helpful for other family members. It can also be useful for prenatal counseling.
The Duke ACGC is one of the only comprehensive clinics of its type in the southeastern United States.
We provide genetic counseling and clinical genetics care for a variety of cardiovascular disorders, including but not limited to:
Our diverse team of health care professionals works collaboratively to provide the following services:
Although our clinic is primarily for genetic evaluations, testing, and counseling, if the health care provider or the patient requests clinical care of the cardiovascular problem, we also help coordinate that care with a Duke Heart Center clinical cardiologist.
Our focus is on counseling and treating for known or suspected genetic disorders in adult patients over 18 years of age, as well as patients with a family history of genetic cardiovascular disorders.
Additional genetic services available at Duke include:
For appointments in the Adult Cardiovascular Genetics Clinic, please call 888-ASK-DUKE (888-275-3853). We can also help answer any questions about the clinic and referrals.
Once you’ve made your appointment, our team helps to coordinate all details, including contacting your insurance company to find out what your out-of-pocket costs would be (if any) before any testing is ordered.
We also coordinate the blood draw and paperwork. For convenience, we can often coordinate blood draws locally for out-of-town patients.
Genetic counseling is provided during your clinic visit to discuss whether genetic testing would be beneficial, and the tests can be arranged for those who would like to pursue this option.
With input from the genetic counselor and physician, you can make an informed decision about strategies for testing and management.
Patients and their families also have the opportunity to participate in future research studies at Duke.
We require a signed consent form, and from there we collect information about your medical problems, family history, as well as a sample of your blood. We try to coordinate the blood sample collection at the same time you are having blood drawn for clinical or genetic testing.
Your information and your blood samples are stored at the ACGC Biorepository and Database for Duke researchers to use in the future.