American Cancer Society: “Heredity and Cancer”
Genetics Home Reference: “Help Me Understand Genetics”
Genetics Home Reference: “Breast Cancer”
American Cancer Society: “Cancer Screening Guidelines”
National Cancer Institute: “Cancer Risk: Understanding the Puzzle”
Birt-Hogg-Dube syndrome (FLCN gene)
Genetics Home Reference: “Birt-Hogg-Dube syndrome”
CHEK2 gene
Genetics Home Reference: “CHEK2”
Cowden syndrome (PTEN gene)
Genetics Home Reference: “Cowden syndrome”
Cowden Syndrome Support Group on Yahoo
Familial Adenomatous Polyposis & MUTYH-Associated Polyposis (APC & MUTYH genes)
Collaborative Group of the Americas on Inherited Colorectal Cancer: Improving understanding of the basic science of inherited colorectal cancer and the clinical management of affected families.
Genetics Home Reference: “Familial adenomatous polyposis”
FAP International Information Foundation: A discussion forum on FAP.
FAP Gene Support Group on Yahoo
Genetic Health: “Overview of surgical procedures for those with FAP”
Familial Melanoma (CDKN2A/p16 & CDK4 genes)
National Cancer Institute: “Genetics of Skin Cancer – Melanoma”
Hereditary Breast and Ovarian Cancer Syndrome(BRCA1 & BRCA2 genes)
Facing Our Risk of Cancer Empowered (FORCE): A discussion forum specifically for women at increased risk of developing breast or ovarian cancer.
Sharsheret: Linking young Jewish women in their fight against breast cancer.
National Cancer Institute: BRCA1/2 cancer risk and genetic testing
Hereditary Diffuse Gastric Cancer (CDH1 gene)
No Stomach for Cancer: Supports HDGC research and families with HDGC.
Cancer.Net: Oncologist-approved cancer information from the American Society of Clinical Oncology.
Hereditary Leiomyomatosis and Renal Cell Cancer syndrome (FH gene)Genetics Home Reference: “Hereditary leiomyomatosis and renal cell cancer syndrome”
Hereditary Paraganglioma/Pheochromocytoma (SDHB, SDHC, SDHD, SDHAF2, & TMEM127 genes)
Genetics Home Reference: "Hereditary paraganglioma – pheochromocytoma"
PheoParaTroopers: A patient-run group for people living with pheochromocytoma and paraganglioma
Juvenile Polyposis Syndrome (BMPR1A & SMAD4 genes)
Collaborative Group of the Americas on Inherited Colorectal Cancer: Improving understanding of the basic science of inherited colorectal cancer and the clinical management of affected families.
Genetics Home Reference: “Juvenile polyposis syndrome”
Juvenile Polyposis Syndrome/Hereditary Hemorrhagic Telangiectasia (SMAD4 gene)
Genetics Home Reference: “Juvenile polyposis syndrome”
Li-Fraumeni Syndrome (TP53 gene)
Genetics Home Reference: “Li-Fraumeni syndrome”
National Cancer Institute: “Clinical and Genetic Studies of Families with Li-Fraumeni syndrome”
Lynch Syndrome (MLH1, MSH2, MSH6, MPS2 & EPCAM genes)
Lynch Syndrome International: Providing support for individuals afflicted with Lynch syndrome, creating public awareness of the syndrome, educating members of the general public and health care professionals and providing support for Lynch syndrome research endeavors.
Genetics Home Reference: “Lynch syndrome”
Genetic Health: “Overview of surgical procedures for people with Lynch syndrome”
Multiple Endocrine Neoplasia type I (MEN1 gene)
Genetics Home Reference: “Multiple endocrine neoplasia”
National Endocrine and Metabolic Diseases Information Service: “Multiple Endocrine Neoplasia Type 1”
Multiple Endocrine Neoplasia type 2 (RET gene)
Genetics Home Reference: “Multiple endocrine neoplasia”
Neurofibromatosis Type 1 (NF1 gene)
Genetics Home Reference: “Neurofibromatosis type 1”
Medline Plus: “Neurofibromatosis”
PALB2 gene
Genetics Home Reference: “PALB2”
Peutz-Jeghers syndrome (STK11 gene)
Collaborative Group of the Americas on Inherited Colorectal Cancer: Improving understanding of the basic science of inherited colorectal cancer and the clinical management of affected families.
Genetics Home Reference: “Peutz-Jeghers syndrome”
Tuberous Sclerosis Complex (TSC1 & TSC2 genes)
Genetics Home Reference: “Tuberous sclerosis complex”
Von-Hippel Lindau syndrome (VHL gene)
VHL Family Alliance: Provides information for families and physicians, and local self-help support groups for families with VHL.
Genetics Home Reference: “Von-Hippel Lindau syndrome”
National Society of Genetic Counselors: “Position Statement on Direct to Consumer Genetic Testing”
National Cancer Institute: “Understanding Cancer Series – Gene Testing”
American Cancer Society: “Genetic Testing: What You Need to Know”
National Society of Genetic Counselors: “Making Sense of Your Genes: A Guide to Genetic Counseling”
National Society of Genetic Counselors: “FAQs about Genetic Counselors and the NSGC”
National Society of Genetic Counselors: Find a Genetic Counselor
National Cancer Institute: Cancer Genetics Services Directory
National Human Genome Research Institute: “Genetic Information Nondiscrimination Act (GINA) of 2008”
Facing Our Risk of Cancer Empowered (FORCE): “Insurance and Privacy Issues”
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